Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD) are connective tissue conditions that can have a big impact on hand and upper limb function. People with these conditions often experience joint instability, frequent sprains, pain, and difficulty performing daily activities. Fortunately, hand therapy can play an important role in managing symptoms, improving hand function, and preventing further injury.
Understanding Ehlers-Danlos Syndrome and Hypermobility
EDS and HSD are conditions that affect the collagen in the body, making connective tissues more elastic and less supportive than they should be. This can lead to:
- Joint hypermobility – joints that bend beyond their normal range
- Frequent dislocations or subluxations (partial dislocations)
- Joint pain and fatigue
- Early-onset osteoarthritis due to repeated micro-injuries
- Grip weakness or difficulty with fine motor tasks
The hands are particularly vulnerable because of the many small joints and ligaments that rely on stable connective tissue for support. Tasks like writing, typing, buttoning clothes, or opening jars can become painful and frustrating.
How Hand Therapy Can Help
Hand therapists (occupational therapists or physiotherapists with specialist training) focus on preserving joint health, improving function, and reducing pain. Treatment is tailored to each individual but may include:
1. Joint Protection: Education & Splinting
- Learning how to avoid positions that overstress the joints
- Using ergonomic techniques and pacing activities to prevent flare-ups
- Selecting adaptive equipment to reduce strain during daily tasks
- Fabrication of splints and supports to aid joint protection and reduce discomfort with daily tasks
2. Strengthening & Stability Exercises
- Gentle strengthening of the small hand muscles to improve joint support
- Proprioceptive training (awareness of joint position) to reduce dislocations
- Stretching (used cautiously) to maintain mobility without causing instability
3. Pain Management Strategies
- Heat or cold therapy
- Soft tissue techniques and mobilisation
- Activity modification to reduce repetitive strain
The Role of Splinting in EDS and Hypermobility
Splints are a key tool for many people with EDS or HSD because they support unstable joints, reduce pain, and allow functional use of the hand without injury.
Types of Splints Used:
1. Custom Thermoplastic Splints
- Fabricated by hand therapists
- Provide targeted support to specific joints (e.g., thumb or wrist)
- Often used temporarily during flares or recovery from injury – splints can be used long term but will need to be replaced periodically due to wear-and-tear.
2. Silver Ring Splints
- Elegant, low-profile splints that look like jewellery
- Commonly used for swan-neck or boutonniere deformities, or general finger/thumb hypermobility
- Provide stability while allowing functional movement
- Can be worn all day without restricting fine motor activities
Silver ring splints are particularly popular for people who need long-term joint support but want a discreet, durable solution that blends with everyday life. Your hand therapist will measure you for the splint, which is then ordered direct from the company. Customisation is often possible, and your hand therapist can liaise directly with their design team.
Why Early Intervention Matters
EDS and HSD cannot be cured, but early hand therapy can make a huge difference by:
- Preventing repetitive joint injuries
- Delaying or avoiding long-term deformities
- Supporting independence in daily life
- Reducing chronic pain and fatigue
Working closely with a hand therapist allows you to develop a tailored plan for joint protection, strengthening, and splinting, giving your hands the best chance to stay strong and functional for as long as possible.
Takeaway Message
If you live with Ehlers-Danlos Syndrome or Hypermobility Spectrum Disorder and struggle with hand pain, frequent sprains, or joint instability, you don’t have to just “put up with it.” Hand therapy, including the use of custom splints or silver ring splints, can help you protect your joints, regain confidence in hand use, and keep doing the activities you love.
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